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Rank: Newbie  Groups: Registered
Joined: 3/23/2010 Posts: 2
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Hi, My name is Hayley i am 24 and i have had RA since the age of 15. I was on Methatrexate for 4-5years, the trouble i had on this drug was that i got alot of mouth sores, ulcers and a swallon throat so i had to come off them i am now being trated with Sulfalazine and Plaquiel and they dont have many side afftects at all, but unfortunatley by body is getting used with them and its not bringing the inflamation level down as low as the consultant would like so i have to start a new drug TNF (Humira) does anyone know any thing about this? as im not sure i want to go on it as its only been out for 15years Hayley
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
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Hi Hayley
Welcome to the forum.
There are a lot of people on the forum who are on Humira and for most of them, it has been a wonder drug and helped so much.
I'm sure when they pick up on your post they will come on and answer any queries you may have.
Nice to "meet" you and look forward to getting to know you.
I'm 66 (almost 67) the granny of the forum and I've had RA for 7/8 years, married to Steve with daughter, son in law and 2 super grandkids.
Take care
Love Jeanxxxx
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Rank: Advanced Member  Groups: Registered
Joined: 1/7/2010 Posts: 441 Location: Bristol
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Hi Hayley, Welcome to the forum! I'm sure you will get loads of support for all aspects of RA. I was on Humira for about two years and got on really well with it until it stopped doing the job and I then went onto another anti-TNF. I'd say have a go with it. The injection pens are easy to use and I had no (unwanted) side effects with it. I did have a reduced appetite whilst on Humira but that was a bit of a blessing because it helped me lose a little excess baggage!  Looking forward to getting to know you Joanna
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Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 1,524 Location: W. Yorkshire
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Hi Hayley-yes I started on Humira over a year ago. It is a frightening thing to read about but it seems to be working for me. The consultant tells me that my blood levels are doing well on it. I've just started on MTX with it because its effectiveness seemed to wear off a few months ago and my bloods went sky high but the MTX has brought them back under control. My thinking about this drug is, do I want a better life now and be able to get on with things or do I NOT take it in case side effects show up in 15 or so years time? i decided I wanted a better life NOW! YES I'VE CHANGED, PAIN DOES THAT TO PEOPLE.
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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Hi Hayley,
Welcome to the forum!
I take humira and mtx and the humira has helped me a lot.
It is scarey when you read the long list of possible side effects but I haven't had any bad side effects so far and I agree with Julie, I want quality of life now, I don't want to wait until the drug has been out longer.
Looking forward to getting to know you.
Doreen xx
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 2,127
Location: Thornton Cleveleys
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Hi Hayley Welcome to the forum. I am Lyn, married to Mike and we have four kids at various stages of education. We live in Thornton Cleveleys in Lancashire. Sorry I'm unable to help! Have had RA for almost 22 years and run the gamut of medication and surgery but not yet made it to Humira! Currently on Enbrel, Methotrexate etc.. I have heard excellent results from Humira and many people on the forum use it with good effect. The long term effects of many of these newer drugs are unknown but as others have said you have to weigh up what's right for you now, quality of life now or risk possible long term damage. Personally I too would go for it! All the best Lyn x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,582 Location: Oxfordshire
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Hi,
I have had RA since i was very young too and know how it feels!
I would also say go for it! It is a balance of a better quality of life and this is paramount when you're only 24! (oh to be 24 again......LOL)
It is very frightening reading of the possible side effects yet uncontrolled RA really is the more dangerous, plus once there is erosion it is not reversible.
Much love, and welcome!
Amanda
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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hello hayley and welcome- I was your age when I went onto another anti tnf called Enbrel.
it was scarey but like you I had tried other drugs and this seemed the best option. Now they have 10 more yrs experience of the anti tnfs! (I am 34 now)
I couldnt tolerate the Humira Im afraid but for many many people it has been the miracle drug that has given them their life back.
Jenni xxhow to be a velvet bulldoser
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Rank: Advanced Member  Groups: Registered
Joined: 3/23/2010 Posts: 32 Location: Stratford on Avon
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Hi Hayley I am on Humira since December 23rd last year and it was a real Christmas gift I have been fantastic on it, but I won't lie these last 2 doses feel as they have run out before the full 14 days and i have felt awful. I have spoken to my Rheumy nurse and she has said that this has happened a few times to other patients of hers. I was on a fairly high dose of steroids and have got down to 3.5mgs but rheumy says that I need to go back to 10mgs and come down as slowly as 1mg a month. So enough about me go for the Humira the nurse will go over all the do's and dont's but I have used someone elses advise and i use an ice pack to start with for 10 minutes and then again after the injection, it helps with the pain of the jab and the after effect I get of an itchy lump for a few days. Good luck Emma kind regards Trisha life is too important to be taken seriously Oscar Wilde
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Rank: Advanced Member  Groups: Registered
Joined: 12/6/2009 Posts: 84 Location: Northern Ireland
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Hi Hayley I am not on Humira but have been on Enbrel a year. I was anxious about it but if I was going to get my life back I had to give it ago. And I have never looked back. Joy
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 690
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Hi Haley,
A big warm welcome to the forum. I'm 50, married with our 23 yr-old daughter living at home with us, and was diagnosed with RA 18 months ago.
So far I have not fared very well on the drugs for RA, and seem to be a bit of an awkward so-and-so, as the Humira doesn't seem to like me either. However, that doesn't mean to say that it will cause you any problems as indicated by the people who have been given a new lease of life on this drug with little, or no side effects.
love,
Barbara
XXXXXX
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